CURRENT AGE : 32
DIAGNOSED WITH NF: I was diagnosed with neurofibromatosis at age four. The doctors said it was too dangerous to operate on me. As each day passed my tumors grew larger and larger. I knew from an early age that I was disabled. Often it feels like life is impossible I’ve had to find the strength inside to carry on. When I went to school, people pointed and laughed at me I was miserable so I left.
DAILY ROUTINE: I have got used to living like this. When I get up in the morning, I go downstairs for breakfast and a wash. I don’t need to brush my teeth, as the tumor has knocked them out.
FAMILY LIFE : I’d be lost without my family’s help I can’t do even the tiniest thing. Because of my tumors I can’t earn money to look after my parents If I could be cured, I would do everything possible to help them.
THE FUTURE: As each day passed my tumors grew larger and larger. This operation is the only chance I have of carrying on my life.